“I think you have Lyme disease,” my practitioner stated sympathetically. I glanced into her serious face and was in denial.
No. It could not be. But as I went over each possible symptom on the evaluation form, the number I experienced began to add up. What I first thought was an ankle sprain was instead a symptom of a horrible chronic illness. My ability to live normally and independently had disappeared as the bacteria wreaked havoc within my body. I could barely have my feet at an elevation below my heart without intense pain and thus could do nothing for myself but what can be done lying in bed. And now the diagnosis meant that I was in it for the long haul. The only way out of the illness caused by a bite from a tiny little deer tick was to follow the careful directions of treatment until the symptoms were gone.
My initial feelings when first diagnosed with Lyme disease and those I had at the beginning of the COVID-19 pandemic where quite similar. First, Lyme was something other people got; it would never happen to me. COVID was all the way in Asia; there was no way it would spread to us. Then I did contract Lyme disease, and I had to live on with the reality of a long recovery, if any. COVID did make it to the United States, and most states responded with restrictions meant to curb this new, unpredictable and sometimes deadly illness.
Lyme disease and all chronic illnesses with their open-ended diagnosis are similar to the COVID-19 situation we are facing as a world. We hope to get to the end of this irregular experience and return to some sense of normalcy, but we do not know when or how it will eventually happen. But they can also be similar in how we bear with the suffering resulting from the situation.